Most of us see them in our social media feed or linked to news stories on a daily basis: requests from someone we likely do not know asking us to make a donation to a worthwhile cause on a crowdfunding site. Use of crowdfunding has grown significantly in popularity in recent years, and this includes campaigns asking us to donate funds for someone else’s medical care. These requests range from assisting someone in paying their regular bills at home while taking medical leave to raising funds to access experimental surgeries abroad.
What privacy threats exist? Who benefits the most from these campaigns? How do campaigners appeal to potential donors to support their cause? What are some of the long-term risks associated with sharing intimate health information in a public forum? These are some of the questions we examine in our interdisciplinary, multi-method MedCRT research program. Our program has been funded by grants awarded by the Canadian Institutes of Health Research and the Greenwall Foundation.
Our medical crowdfunding research team (MedCRT) specializes in examining the practical and ethical issues associated with medical crowdfunding.
The core MedCRT research team is based at Simon Fraser University, which is located just outside of Vancouver in Canada. We work with a number of collaborators who are based at other universities. We use an interdisciplinary approach to examining the equity and ethical issues associated with medical crowdfunding, and have engaged with both big data and qualitative frameworks.
“We Don't Want Him Worrying about How He Will Pay to Save His Life": Using Medical Crowdfunding to Explore Lived Experiences with Addiction Services in Canada. 2019. International Journal of Drug Policy.
Our core MedCRT research team is based out of Simon Fraser University:
8888 University Dr
Burnaby, BC V5A 1S6